As the few of you who read my blog know, I am a busy person (probably not as busy as many, but busy enough) and we have had a lot of changes recently. I haven't even thought about this blog-- though I wish I had. I so want to keep up, but my life doesn't seem to allow me to. When I do have a chance to write, I don't feel like it!
Anyway, one of the changes was our big move-- and hopefully last move! My in-laws generously bought a house for us (we will "rent" until the mortgage is paid off) and we are now living much closer to Eric's job and in the school district where Bretton attends so he is now home with us for good! Life is much easier in the way of transportation and getting places when you live closer to town! The down side is we are now a 1/2 hour from our family, which is hard with the kids...
Another change, which leads into yet another change, is Ephraim is receiving in home services/therapy (which I might have mentioned before). He really doesn't like it much, especially PECS, but he is getting better and doing well. While in home services are great, I am unable to give him all the time and attention he truly needs and deserves. With Lorelai also needing attention, I can't keep up on all the things that E needs in order to stay "in our world". He really needs one on one as much as possible. So, it was a super hard decision for us, but we have decided to send him to Woodfords Family Services. He will start out 3 days a week, 6 hour days. Eventually, we will move him up to full time. The school is an hour away, and he will be riding with someone we don't yet know. I think that is the hardest part for me. But, others do it all the time, and I know that we have to do what we have to do in order to get him the best services possible. This program is an ABA program with mostly children diagnosed with Autism attending. On the days he isn't there, we will still have CDS come for in home services and we are going to be doing some in depth research on floor time therapy, as that is what I believe would be a better choice-- something very appropriate for his age. We will incorporate that into his nightly routine.
Of course, Eric and I are both worried sick about sending him. Not because we worry about him being cared for and learning, but because we have never sent him to preschool or daycare or anywhere really. A few family members and friends have had him, but not on a regular basis. Eric was with him for the first 1.5 years of his life and I have been with him since then. Like many children with Autism, Ephraim doesn't mind being around other people when he is able to be in his own world, doing his own thing. But, when you request for him to do something outside of his world, it is hard enough to be his parent whom he knows and trusts. With other people, it isn't so easy. If he doesn't know you at all, or only knows you as someone who makes him "do work" then it is very challenging.
Obviously, the people at this place are trained in dealing with this, but when I think about him acting up, having a hard time responding to them, being resistant, wondering where his mommy is, etc: it breaks my heart. I know the first few days, maybe even weeks is going to be hard. Especially since he may be confused as he will only be there every other week day. He will eventually go full time, but right now we want to see how he responds to it in general. I don't honestly know if we are making the right decision by only doing part time or if we should just start right off full time.
At this point, Eric and I just hope that it works out for all of us, and that Ephraim can get into a good routine quickly. We also hope that Eric can figure out what to do about work. He works many evenings, which would mean he wouldn't see Ephraim much at all. Ideally, he would like to have a set schedule with his guaranteed 30 hours, but that isn't going to happen. As it is he is lucky to get 30 hours, but has to work whatever is available to get them. Plus, he is starting to wish he was home and I was working! Sheesh! I always thought I wanted to be a SAHM. Part of me still does, but I have to be honest: part of me feels overwhelmed and alone. I sometimes wish I was working and that we had just put the kids into daycare. Of course, of all the reasons that we decided that I would resign from my job and stay home was because E needed a lot of extra time, attention, and therapies that he wouldn't get at just any daycare center. Don't get me wrong, I love being home, too! I'm not sure if anyone would really understand, and I am sure I have been, and am being, judged for feeling this way, but it is what it is.
So, a week from today, E will start school. I have to believe it is the best decision we can make for him for now. Eric and I are going to wait it out a bit to see what happens, then make decisions regarding whether I should work part time, or just stay home with Lorelai. We could certainly use the extra money. If you want to call it extra. Anything we bring home, now or in the future, goes to bills. There is no such thing as extra money-- though we so wish there was. But that is another whole blog post, that I probably won't ever write. Ha!
Lastly, I have started a small business of sorts. If one can call it a business when one doesn't get much business at all! Though, I have received a few orders and am thankful for those, I was really hoping that I could make enough money to help pay a bill or two so that we don't feel so strapped every month. :\ I'm going to attempt some new/more products in the coming month or so and if I still don't get much business, then I guess it is a flop.
You and I have scary much in common! I feel ya. We are also wrestling these same decisions. I will probably be seeking you out for advice very soon!
ReplyDeleteHi Jennifer! I just saw your comment-- I am horrible about keeping up with things. ;) Let me know if there is anything I can help you out with-- always willing to help others.
DeleteCurious-- are you thinking of putting your son in a program, or is he already in one? (I haven't read enough of your blog yet to know-- sorry! I'm working on it though!) I'm actually going to write a post soon on all of Ephraim's progress at his new school-- and how that decision has effected us.